In the comments on that article link John R. Bloxson Jr. tells his horror story about doctors wanting to pull the life supports away from him here is the US. He is on facebook if anyone is interested in looking at what he has gone through with Obamacare.
I also can't say it enough times my son was also diagnosed brain dead thirty-eight years ago. If I had given up as doctors and others encouraged me to do I would have missed the pleasure of having my son with me and having the pleasure of meeting my son's beautiful son.
I also recall when my grandfather was hit by a car and was on life support. He pleaded with my aunt to not let them take away life support after doctors told family members in his hospital room that he was totally brain dead. No one listened to my aunt relating grandpa's request to stay alive. Grandpa had what was supposed to be the best insurance possible, Bluecross Bluesheild that was bought and paid for by his union that he retired from several years previously.
Did MRI’s show most of his brain destroyed and replaced by fluid? You don’t recover from that and this child has had a team of experts keeping him alive and trying to stop the progression. Every case is different, but at what point do you decide it is time?
How did your grandfather plead not to take away life support? It sounds like gross medical malpractice for them to ignore him.
IMO...they should have allowed the parents to take the child to Italy if it was on their own dime and possible to do. It would at least give them closure, that they had tried everything.
But it is wrong to say the doctors killed him or the state. His disease killed him.