think about it. when we get a disease we ask God why but then eventually a scientist figures out how to cure the disease and we thank God. So why doesn't God just put a scientist on earth to cure Alzheimer's? or why does heor wh one more day?
I'm going through that with my mother. It is a horrible end to life. Late afternoon and evening are the worst and after a long day it is hard coping with her. She still resents me for taking the keys away from after the car was totaled. I'm the villain in some giant conspiracy against her because she still believes there is nothing wrong with her, that is when she recognizes me. It is not a passive end but can be quiet volatile when they get scared or disoriented.
can you tell I'm glad you shared that with me? I've been meaning or hoping to talk about this with someone. she is starting to ask who people she should definitely knows like her grandson or her mother or her sister or brother. but I cannot imagine the day where she doesn't know who I am or my dad is when we were with her all the time I'm so sorry for you.
all the people that she doesn't know who they are when we are talking about them are dead or she doesn't see them anymore. her grandson is in Europe and he's coming back in a couple months so when we talk about him he'll say who over and over again. but then she asked me the next minute when he's coming back
This morning she tried to make breakfast. She put some eggs in the poacher and when my bother came to eat with her she did not know who he was or anything about breakfast. She did not know where she was and couldn't even speak with any sense. We got her to her bedroom, which she did recognize, made her lay down for a bit. About an hour later she got up, knew us but was very upset that we were concerned about her and thought we were playing some bad joke on her asking her so many questions. Later when we took her to the doctor for a check she had no idea what year or day it was and confused even the time of day and who had driven her.
I wish I could say it will get better.
I've been hospice for both my in laws and cared for my father in the last year. They were a thousand times easier than my mother. My grandmother didn't even remember how to speak english, and I didn't learn to speak siksika, nor did my mother or those at the nursing home we eventually had to put her in after twice breaking her hip.
I enjoy the good days, and times if day as much as I can, and struggle through all the others. We can't leave her alone and my bother is working most if the time so it falls on me to care for her. There are times even that she forget to go to the bathroom or has trouble feeding herself. When she can we let her make her own food, but cooking, running water, leaving the light on.... these are all problems more often than not. She tries to walk out of the house in various states of undress. She insists to be taken home because she does not recognize where she has lived the last fifteen years. She can be in the middle of a sentence and suddenly everything changes.
You deal with it moment to moment. When she rests, or is quiet in the same room, you take a few minutes to check mail or take a few moment for yourself. My bother does not see her all day everyday so when he sees changes he get upset of at time even blames me for not doing enough. Anyone that is a caretaker of any kind goes through their own hell. Alzheimer's is so much worse. I help my daughter with her youngest who was autistic. That was so much easier.
Take time for yourself. Don't forget your own heath. Don't skip meals, even if they are just small ones or snacks. Don't take too much coffee, it is hell on the nerves. Make lists. Make a recording for your parent to help them stay in touch with the now, who and where. Stay with a routine as much as possible, but be flexible when you need to. Moment to moment. Remember they raised you and it was probably no piece of cake for them. Take time to laugh. If you need to, lock their bedroom door but put a baby monitor in there so you can get some sleep but can respond in an emergency.
Smile and remember you love them.