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Cancer is horrible for anyone, but for children to get it is the most tragic. I wish her continued health!My daughter's best friend was diagnosed with "High Risk Pre-B Cell Acute Lymphoblast​ic Leukemia" at age 13. After 3 years she's finally rid of it but still has periodic checkups. It was terrible to watch her and her family deal with the experience.
An organization called called "UNOS" runs this and I know for a fact they are rife with horrific politics and attitudes, or at least were as of a few years back. Hopefully things have changed.It prompted me to become an organ donor
My Mother told me the radiation treatments were the worst thing ever!
The chemo, she said, was easier than the radiation.
My Mother had 6 weeks of chemotherapy and she had 36 radiation treatments....36!!!!!!!!!!
They literally burnt her up inside. For when it came time several months later, after we were told she was in remission, and the cancer was back- radiation was no longer an option, they said to put her on the table and try radiation one more time, would kill her right then.
And surgery was never an option for my Mother. She had a hilar mass....and for anyone that doesn't know...that's a cancer mass right next to the heart and all the other major arteries.
She had a mass that was 2.7 x 2.9 cm.
I would get so fucking pissed.....cursing at anything I could. They could send a man to the moon, invented all this technology with cell phones and iPods and all the time, it's something new or another......but nobody could find a way to save my Mother, to remove a small mass off her lung.
I have to hush now, I still get emotional when I think about it all :-(
Oh many of them still do that, make no mistake. Oncologists and other medical staff vary WIDELY on attitudes and even competency. I know, because taking this journey with my girlfriend I have seen both extremes and all in between, and we've been to some of the most highly-touted cancer centers in the world.It's been amazing to see how fast my attitude changed, once I realized that treating cancer even 20 years ago is far, far advanced today. Cancer specialists are also much more aware that they need to treat the emotional side effects and can no longer just shuttle patients through test after test and with a pat on the head just instruct them to do as they say.
That is how is SHOULD be and I'm glad for you there. But again, many do not do this.My oncology team constantly assures me that I AM THE BOSS. I am the patient, and if something isn't "working" for me, then it's up to THEM to design therapy around my body blueprint and my comfort zone, not just what's convenient or favored by them in general.
The most important thing I think people need to keep in mind is just what you said above, ie YOU are the boss and most importantly YOU SHOULD BE THE BOSS. I'm not just talking about feeling "comfortable" etc, but in really taking charge of your condition. Read and research all you can, ask a lot of questions (as you said), and never be afraid to question anything. This is your life! Being intimidated into going along with whatever they say without feeling sure it's right could be a very dangerous mistake. Never I do mean NEVER take a single doctor's word for anything. Always, always seek out (at least) a second opinion, if not a third or fourth. Doctors are human and so aren't always right and far from perfect, although some seem to think so.
Treating cancer is often far more an art than a science. Each case is unique and rarely are there pat answers.
/soapbox
Best of luck to anyone dealing with this!
My Mother told me the radiation treatments were the worst thing ever!
The chemo, she said, was easier than the radiation.
My Mother had 6 weeks of chemotherapy and she had 36 radiation treatments....36!!!!!!!!!!
They literally burnt her up inside. For when it came time several months later, after we were told she was in remission, and the cancer was back- radiation was no longer an option, they said to put her on the table and try radiation one more time, would kill her right then.
And surgery was never an option for my Mother. She had a hilar mass....and for anyone that doesn't know...that's a cancer mass right next to the heart and all the other major arteries.
She had a mass that was 2.7 x 2.9 cm.
I would get so fucking pissed.....cursing at anything I could. They could send a man to the moon, invented all this technology with cell phones and iPods and all the time, it's something new or another......but nobody could find a way to save my Mother, to remove a small mass off her lung.
I have to hush now, I still get emotional when I think about it all :-(
Well now after a few weeks of treatment, I certainly know how your mother felt. I've had a severe reaction, and they've suspended radiation treatment for a week, possibly longer. It wound up burning the inside of my mouth and my lips to the point I was blistering. That was a week ago, and just today the scabs on my lips are beginning to show signs of healing. It wasn't pretty. So now, after ravaging my insides, I'm just trying to get my strength back, and then on Monday I'm supposed to find out how the radiology oncologists want to proceed. But I sure as hell won't go through this again, and they know it.
Well now after a few weeks of treatment, I certainly know how your mother felt. I've had a severe reaction, and they've suspended radiation treatment for a week, possibly longer. It wound up burning the inside of my mouth and my lips to the point I was blistering. That was a week ago, and just today the scabs on my lips are beginning to show signs of healing. It wasn't pretty. So now, after ravaging my insides, I'm just trying to get my strength back, and then on Monday I'm supposed to find out how the radiology oncologists want to proceed. But I sure as hell won't go through this again, and they know it.
Shortages of vital drugs, particularly cancer-fighting medication, have raised concerns in the US, where regulators often have to race to try to find replacements. A recent report by the Federal Drug Administration (FDA) found that the number of important treatments that are difficult or impossible to find nearly tripled from 61 to 178 between 2005 and last year. Most of the rare medications are for hospital use, including sterile injections, intravenous treatments, anesthetics and antibiotics. The products include both name-brand and generic drugs. FDA hears from patients and also from healthcare -professionals and organizations about the terrible impact the shortages have had, spokeswoman Shelly Burgess said. We continue to do all we can under our current authority to address shortages when they occur.
However, the FDAs efforts are hindered because it cannot force private pharmaceutical companies to produce certain drugs or even require them to notify the agency when they plan to discontinue one, Burgess said. Last year, it was able to avert 38 shortages, mainly by persuading other manufacturers to produce the drugs or helping to resolve production issues. However, a survey of 820 -hospitals carried out in June by the American Hospital Association found that almost all had run out of an important drug over the past six months. Eighty percent said they had to delay patient treatments because of drug scarcity, and 70 percent said they administered less effective treatments. We really need to take a very careful look at what is going on. I have never seen anything like this and I have been a pharmacist for over 40 years, said Mike Cohen, a pharmacist at the non-profit Safe Medical Practices.
The group recently surveyed 1,800 health professionals and found that a third of doctors and a fifth of pharmacists were aware of adverse reactions in their patients including deaths because of drug shortages. Cynthia Reilly of the American Society of Health System Pharmacists said the dramatic increase in shortages is in part due to quality issues. In a lot of instances, the manufacturer is either having problems with the production lines or perhaps they found particular products in vials, so they have to do a recall, she said. Reilly fears the shortages will worsen as the pharmaceutical industry continues to consolidate, and as more companies stop producing generic drugs because they are less profitable.
A few years ago, five companies were making a similar product. Now there is only one or two ... There are not a lot of companies to fill the gap, she said. She and other advocates believe new legislation to allow the FDA to force companies to alert it six months in advance of closing a production line would be helpful, because it would give the agency more time to find a substitute. Two bills with broad support are currently under discussion in Congress. Another problem is the so-called gray market, whereby distributors scoop up rare drugs and then charge hospitals exorbitant rates for them. Some drugs can fetch up to 1,000 times the normal price. We tell our members to contact their state attorney general. Unfortunately there is opportunity for unscrupulous behavior, Reilly said.
Drug shortages in the US mount - Taipei Times
Writing in the journal Cancer Cell, they advise cancer patients not to take the supplements. The two fatty acids involved, which are also produced by stem cells in the blood, lead to tumours becoming immune to treatment. Cancer Research UK advised patients to ask their doctor whether they would be affected. Scientists in the Netherlands were investigating how tumours develop resistance to treatments.
Fat shield
Experiments on mice showed that stem cells in the blood responded to the widely-used cancer drug cisplatin. The cells started producing two fatty acids, known as KHT and 16:4(n-3). These fatty acids begin a series of chemical reactions, which mean cancerous cells become resistant to chemotherapy. Using drugs to block the production of the fatty acids prevented this form of resistance which "significantly enhances the chemotherapy," the study says. However, researchers warned that these fatty acids were "abundantly present in commercially available fish oil products". They showed that off-the-shelf fish oil supplements, given to mice, could stop chemotherapy working against some tumours.
Prof Emile Voest, lead researcher at University Medical Centre Utrecht, said: "We show that the body itself secretes protective substances into the blood that are powerful enough to block the effect of chemotherapy. "These substances can be found in some types of fish oil. "Whilst waiting for the results of further research, we currently recommend that these products should not be used whilst people are undergoing chemotherapy."
Jessica Harris, health information manager for Cancer Research UK, said: "This interesting study suggests one possible option for stopping cancers becoming resistant to treatment, but it is at an early stage and much more research would be needed to develop ways to halt resistance. "The results also suggest that fish oil preparations may reduce the effectiveness of chemotherapy drugs. "Cancer patients who are taking or thinking of taking these supplements should talk to their doctors to find out whether they could affect their treatments."
BBC News - Fish oils block chemotherapy drug
There is no cure for bone cancer (in fact there are few if any true cures for any cancer). I can't speak to which hospitals are best in the UK, but if you search the internet, I'm sure you can find some info. I wish you the best!Hey guys,.....
My cousin has cancer (a blood cancer) and he is at this time at normal stage. Is there cure available for cancer in UK. Which hospital is best know regarding to their cancer cure? We have to change his whole body blood and want a new one B+. Hope i will get friendly suggestions.
I'm so sorry for your loss. As for cures, cancer is actually not one disease but many, so we will likely never find a single thing that cures all at once, but hopefully in the not too distant future we will start finding cures.....My mom died from lung cancer in 1998 perhaps the worst experience in my life. I also hate cancer and hope there is one day a cure for it, but it likely will not happen in my life time.
Hey guys,.....
My cousin has cancer (a blood cancer) and he is at this time at normal stage. Is there cure available for cancer in UK. Which hospital is best know regarding to their cancer cure? We have to change his whole body blood and want a new one B+. Hope i will get friendly suggestions.
An Associated Press review of industry reports and interviews with nearly two dozen experts found at least 15 deaths in the past 15 months blamed on the shortages, either because the right drug wasn't available or because of dosing errors or other problems in administering or preparing alternative medications. The shortages, mainly involving widely-used generic injected drugs that ordinarily are cheap, have been delaying surgeries and cancer treatments, leaving patients in unnecessary pain and forcing hospitals to give less effective treatments. That's resulted in complications and longer hospital stays.
Just over half of the 549 U.S. hospitals responding to a survey this summer by the Institute for Safe Medication Practices, a patient safety group, said they had purchased one or more prescription drugs from so-called "gray market vendors"_ companies other than their normal wholesalers. Most also said they've had to do so more often of late, and 7 percent reported side effects or other problems. Hospital pharmacists "are really looking at this as a crisis. They are scrambling to find drugs," said Joseph Hill of the American Society of Health-System Pharmacists.
A hearing on the issue was set for Friday before the health subcommittee of the House Energy and Commerce Committee. The Food and Drug Administration is holding a meeting Monday with medical and consumer groups, researchers and industry representatives to discuss the shortages and strategies to fight them. The FDA says the primary cause of the shortages is production shutdowns because of manufacturing problems, such as contamination and metal particles that get into medicine.
Other reasons:
Shortages causing the most disruption in care include:
_Sodium phosphate injection electrolyte (controls heart, nerve, muscle function)
_Magnesium sulfate injection electrolyte (controls heart, nerve, muscle function)
_Levofloxacin injection antibiotic
_Foscarnet injection antiviral drug
_Paclitaxel injection chemotherapy
_Doxil injection chemotherapy
_Prochlorperazine injection for nausea
_Ondansetron injection for nausea
Source
Hey guys,.....
My cousin has cancer (a blood cancer) and he is at this time at normal stage. Is there cure available for cancer in UK. Which hospital is best know regarding to their cancer cure? We have to change his whole body blood and want a new one B+. Hope i will get friendly suggestions.
there is no cure for cancer of any kind..there is only treatment and hope that the cancer can be sent into remission. You cannot change his blood type.
I seriously doubt it. But the trend is extremely disturbing regardless.Pharmaceutical companies creatin' shortages to jack up profits..
Often, yes, but by no means always.Then the shit just ends up coming back anyway.....remission is sort of like a fucking tease with cancer.
Lets you think you have a chance for a bit.....then wham, comes back and bites you harder.
Fucking shit.
Cancer is such a dangerous disease. More peoples are dying because of cancer. Now-a-days cigarettes smoking is common in young generation. These will cause cancer. And these young generation know these truth though they are continue these habit. They don't know they are on the path of death.
Cancer doesn't care who it hits...it just hits someone and that person, sadly, is struck down.
