Breaking News Baby Charlie Hurd passed away today

Discussion in 'USMB Breaking News' started by task0778, Jul 28, 2017.

  1. tycho1572
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    tycho1572 Gold Member Gold Supporting Member Supporting Member

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    It sucks knowing this child had a chance at life if he wasn't born in country that had socialized medical care. :(
     
  2. Dragonlady
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    Bullshit. The NHS kept this child on a ventilator for a year. The parents raised money to take him to the US for experimental treatments. They didn't pay for the treatment that kept him alive until they could afford to take him out of country.

    The American doctor who examined little Charlie said the experimental treatment wouldn't help him.

    The American health care system would never have paid for little Charlie's care to this point. The copays would have eaten up the money raised.

    Unless Charlie's parents were wealthy, he wouldn't have received any treatment at all beyond the original diagnosis. At that point, his insurance would have cut off paying for his treatment as a hopeless case.
     
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  3. Divine.Wind
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    Divine.Wind Platinum Member

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    Sad the kid died, but there is no such thing as "free health care". Our world is a world of limited resources. Those resources have to be doled out, usually by those who earn them. The kid, Charlie Gard, had rare but deadly genetic disease: "mitochondrial DNA depletion syndrome, a rare inherited condition that causes muscle weakness and loss of motor skills. Charlie was the 16th person to ever be diagnosed with the disease, according to his parents."

    As the CNN link below delineates, there was no known cure, but a US doctor offered hope of extending the child's life for a fee, the costs of which the parents raised through donations. In the end, the parents decided to pull the plug because Charlie's health had deteriorated: "On Monday, Charlie's parents gave up their fight to take Charlie to the US after new brain and muscle scans revealed their son had deteriorated and was therefore less likely to benefit from the experimental treatment, while his doctors and parents battled in court. Too much time had passed."

    Baby Charlie Gard dies after life support withdrawn - CNN.com
     
  4. Dragonlady
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    Years ago my roommate's sister was diagnosed with some super rare condition and told she would live, at most, another 10 years. My response was that a cure might be found before that 10 years were up.

    My roommate (whose entire family were scientists and highly educated) replied that her disease was too rare and no one was even looking for a cure. Reasearch is only interested in diseases which are common and which will result in a big payday when the cure is found. It simply costs too much money for research, the drug approval process, and clinical trials to bring it to market.

    Charlie Gard was always going to die very young.
     
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  5. Divine.Wind
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    Divine.Wind Platinum Member

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    Sad but true. Limited resources....and public interest. While much as been made about how much money Big Pharma spends and reaps from erectile dysfunction, it's not well known that they (and Uncle Sam) also spend more money on Breast Cancer research over Prostate Cancer by a factor of 2:1.

    [​IMG]
     
  6. Divine.Wind
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    Divine.Wind Platinum Member

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    Thanks for reporting me. It reveals your character.
     
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  7. WinterBorn
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    WinterBorn Gold Member

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    Really? So you think "for profit" insurance companies would have shelled out millions of dollars for an experimental treatment that the doctors in the US have said would not have helped Charlie? Really???
     
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  8. Tipsycatlover
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    Tipsycatlover Gold Member

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    For Profit Insurance companies would not have prevented the family from paying out of pocket for any treatment, experimental or otherwise. For profit insurance companies never had that power. Only the government has that power.
     
  9. WinterBorn
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    WinterBorn Gold Member

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    Ok, so bitch about the gov't overstepping their bounds. But don't blame it on socialized medicine.
     
  10. Divine.Wind
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    Correct, it's pay-to-play for medicine. The problem for the Gard's was trying to raise the money then take the kid to the US. Meanwhile, the kid was spending money on socialized medicine. I don't know all the factors here, but I strongly doubt the Brits just wanted to kill the kid.
     
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