Charlie Gard will get a new hearing

[task0778]

Doesn't mean the High Court will change it's ruling, but it's hard to justify denial of treatment that the state isn't paying for.


Great Ormond Street Hospital says "claims of new evidence" in the treatment of terminally ill baby Charlie Gard have prompted it to seek a new hearing at the High Court.

In a statement, the hospital said: "We have just met with Charlie's parents to inform them of this decision and will continue to keep them fully appraised of the situation.

"Two international hospitals and their researchers have communicated to us as late as the last 24 hours that they have fresh evidence about their proposed experimental treatment.


Baby Charlie: Doctors consider fresh evidence

 

[HenryBHough]

Nationalized Health Care kills.

It has to in order to survive.

 

[Hossfly]

Breaking News from Newsmax.com


There's new hope for Charlie Gard, the critically ill British baby championed by President Donald Trump. The 11-month-old has now been welcomed at a leading New York City hospital, where he’ll be treated with an experimental drug for his rare genetic disease. Read More Here

 

[oldsoul]

Doesn't mean the High Court will change it's ruling, but it's hard to justify denial of treatment that the state isn't paying for.


Great Ormond Street Hospital says "claims of new evidence" in the treatment of terminally ill baby Charlie Gard have prompted it to seek a new hearing at the High Court.

In a statement, the hospital said: "We have just met with Charlie's parents to inform them of this decision and will continue to keep them fully appraised of the situation.

"Two international hospitals and their researchers have communicated to us as late as the last 24 hours that they have fresh evidence about their proposed experimental treatment.


Baby Charlie: Doctors consider fresh evidence

"...fresh evidence about their proposed experimental treatment."

Fresh evidence? Really, they're going with "fresh evidence"? What fresh evidence? That IT WORKS!?

Talk about a classic CYA. Looks like Mrs. May called and said, "You better make sure the egg isn't on MY face. Fix this. NOW!"
Fresh evidence my ass. More like, "Quick, we've been exposed!! Damage control, damage control. Spin, spin"

At least Charlie has a fighting chance now, thanks in no small part to his parents who would not accept a death sentence for their child. Come hell or high water, they would not go "quietly into that good night." Thank God they stood up and said, "not on MY watch."

 

[waltky]

Charlie Gard comin' to America...

Judge Rules Against London Hospital--In Favor of Charlie Gard's Parents
July 10, 2017 | A judge at London's High Court ruled against the hospital and in favor of the parents of baby Charlie Gard--who is suffering from a rare genetic disorder--that they may present new scientific evidence concerning their son's treatment, which will be reviewed this Thursday and could possibly lead to Charlie receiving treatment in the United States. But the outcome is still uncertain and Charlie's fate is precarious.

Charlie Gard is 10 months old. He lives on life support in the Great Ormond Street Hospital in London. His genetic disorder is destructive to muscles and organs, and most people who have the problem die in infancy. The baby's parents, Chris Gard and Connie Yates, want their son to undergo an experimental treatment, which has been helpful in some cases. An online campaign has raised more than $1.5 million for the baby's treament.

Under the health care laws in Britain, however, the parents are not allowed to pursue this option. The hospital contends Charlie is brain-damaged and beyond medical hope, and the hospital wants to shut off his life support. This denial of the parent's desire to seek treatment for their son elsewhere led to several court rulings -- in favor of the hospital. On Monday, July 10, the judge who previously ruled against the Gards agreed to review whatever new evience they can present to him for a reevaluation. “The Great Ormond Street Hospital requested Mr. Justice Francis to reaffirm his prior ruling," Americans United for Life President Catherine Glenn Foster told CNSNews.com from London. "So they argued for him to say that, indeed, there is no new evidence and that they were free to remove Charlie’s [life] support." "He refused to do that today," said Foster. "He found in favor of the family, and announced that there would be a hearing, a full-day hearing on this matter on Thursday, continuing into Friday as needed. And Charlie’s parents and their barristers will get a chance to present the new medical evidence in court.”

AUL President and CEO Catherine Glenn Foster​

Last Thursday, several researchers, clinicians, and a U.S. doctor sent a letter to the Great Ormond Street Hospital explaining that there is evidence that an experimental "deoxynucleoside therapy" could potentially help Charlie Gard. As reported by the BBC, "Signatories to the new letter include a neurologist and a research fellow from Rome Children's Hospital, a scientist from Cambridge University's Mitochondrial Biology Unit and two researchers from Vall d'Hebron Institut de Recerca in Barcelona." As reported by the BBC, "Signatories to the new letter include a neurologist and a research fellow from Rome Children's Hospital, a scientist from Cambridge University's Mitochondrial Biology Unit and two researchers from Vall d'Hebron Institut de Recerca in Barcelona." The AUL's Catherine Glenn Foster was asked by Charlie's mother, Connie Yates, to come to London and advocate for her family. The AUL is the legal arm of the pro-life movement, and fights "for legal protection of life from conception to natural death," states the group's website.

Foster told CNSNews.com that Charlie Gard's parents prefer that their son go to the United States for treatment. "We’re talking about world-class hospitals, first in the field, and that is what they prefer," she said. "And they’re asking that Charlie be treated in the way that they think is best but also in the way that many doctors and hospitals [think] is best.” If there is a ruling in favor of the parents, baby Charlie could be treated at several different facilities in the United Sattes, including New York Presbyterian Hospital and the Columbia University Medical Center. The hospital at the Vatican has also offered to take Charlie in for treatment. The procedure is fairly simple as the medicine is put into milk and the baby drinks it.

MORE

 

[oldsoul]

Charlie Gard comin' to America...

Judge Rules Against London Hospital--In Favor of Charlie Gard's Parents
July 10, 2017 | A judge at London's High Court ruled against the hospital and in favor of the parents of baby Charlie Gard--who is suffering from a rare genetic disorder--that they may present new scientific evidence concerning their son's treatment, which will be reviewed this Thursday and could possibly lead to Charlie receiving treatment in the United States. But the outcome is still uncertain and Charlie's fate is precarious.

Charlie Gard is 10 months old. He lives on life support in the Great Ormond Street Hospital in London. His genetic disorder is destructive to muscles and organs, and most people who have the problem die in infancy. The baby's parents, Chris Gard and Connie Yates, want their son to undergo an experimental treatment, which has been helpful in some cases. An online campaign has raised more than $1.5 million for the baby's treament.

Under the health care laws in Britain, however, the parents are not allowed to pursue this option. The hospital contends Charlie is brain-damaged and beyond medical hope, and the hospital wants to shut off his life support. This denial of the parent's desire to seek treatment for their son elsewhere led to several court rulings -- in favor of the hospital. On Monday, July 10, the judge who previously ruled against the Gards agreed to review whatever new evience they can present to him for a reevaluation. “The Great Ormond Street Hospital requested Mr. Justice Francis to reaffirm his prior ruling," Americans United for Life President Catherine Glenn Foster told CNSNews.com from London. "So they argued for him to say that, indeed, there is no new evidence and that they were free to remove Charlie’s [life] support." "He refused to do that today," said Foster. "He found in favor of the family, and announced that there would be a hearing, a full-day hearing on this matter on Thursday, continuing into Friday as needed. And Charlie’s parents and their barristers will get a chance to present the new medical evidence in court.”

AUL President and CEO Catherine Glenn Foster​

Last Thursday, several researchers, clinicians, and a U.S. doctor sent a letter to the Great Ormond Street Hospital explaining that there is evidence that an experimental "deoxynucleoside therapy" could potentially help Charlie Gard. As reported by the BBC, "Signatories to the new letter include a neurologist and a research fellow from Rome Children's Hospital, a scientist from Cambridge University's Mitochondrial Biology Unit and two researchers from Vall d'Hebron Institut de Recerca in Barcelona." As reported by the BBC, "Signatories to the new letter include a neurologist and a research fellow from Rome Children's Hospital, a scientist from Cambridge University's Mitochondrial Biology Unit and two researchers from Vall d'Hebron Institut de Recerca in Barcelona." The AUL's Catherine Glenn Foster was asked by Charlie's mother, Connie Yates, to come to London and advocate for her family. The AUL is the legal arm of the pro-life movement, and fights "for legal protection of life from conception to natural death," states the group's website.

Foster told CNSNews.com that Charlie Gard's parents prefer that their son go to the United States for treatment. "We’re talking about world-class hospitals, first in the field, and that is what they prefer," she said. "And they’re asking that Charlie be treated in the way that they think is best but also in the way that many doctors and hospitals [think] is best.” If there is a ruling in favor of the parents, baby Charlie could be treated at several different facilities in the United Sattes, including New York Presbyterian Hospital and the Columbia University Medical Center. The hospital at the Vatican has also offered to take Charlie in for treatment. The procedure is fairly simple as the medicine is put into milk and the baby drinks it.

MORE

Charlie Gard comin' to America...

We'll see about that, but at least there is HOPE.

 

[waltky]

'All We Want is to Take Our Baby for Treatment in U.S.A.'...

Parents of Baby Held by UK Hospital: All We Want is to Take Our Baby for Treatment in U.S.A.
July 13, 2017 -- The parents of baby Charlie Gard, who suffers from a rare genetic disorder, said they have never asked the courts, the hospital, or anyone for anything and that all they want is "permisison to go" and allow their son to be treated by specialized doctors in the United States or Italy. But the Great Ormond Street Hospital in London, where little Charlie is on a ventilator, will not allow his parents to take their child to those specialists.

Charlie Gard is 11 months old and suffers from a genetic condition that attacks his muscles and internal organs; he is the 17th person in the world diagnosed with the illness, called mitochondrial DNA depletion syndrome. Because of the laws under the Britsh National Health Service, Charlie's parents are not allowed to take their son to other doctors unless the hospital doctors give permission. The parents, Christopher Gard and Connie Yates, have asked for permisison since November 2016 but the British hospital has refused.

Christopher Gard, Connie Yates, and their son Charlie Gard.​

The Gard family has also battled in several courts to get their son released but the courts ruled against them. Today, July 13, the High Court in London, which previously ruled for the hospital, is reviewing new evidence about the experimental treatment being offered by at least seven mitochondrial DNA depletion experts. Two U.S. hospitals have agreed to accept Cahrlie Gard for treatment, as has the hospital at the Vatican. More than $1.6 million in provate donations has been raised to pay for the treatment. “We are continuing to spend every moment, working around the clock to save our dear baby Charlie," said his parents in a statement. "We’ve been requesting this specialized treatment since November, and never asked the hospital, Courts or anyone for anything – except for the permission to go." "We’ve raised over £1.2 Million [$1.6 million] and have had invitations from specialized Doctors in the U.S. and Italy offer their ground-breaking treatment to us and are confident they can help little Charlie," said Christopher Gard and Connie Yates. "We will continue to make the case for us to seek treatment for Charlie with Doctors that are actually specialized in Mitochondrial DNA depletion syndrome, and we hope the Judge and the Courts will finally rule in favor of us seeking treatment elsewhere." "We love him more than life itself," they said. "If he’s still fighting, then we’re still fighting.”

One of the pro-life groups helping the Gards in London is Americans United for Life (AUL). Commenting on the case, AUL CEO Catherine Glenn Foster said, “The medical evidence is consistently clear that Charlie deserves a chance at life. There is much misinformation about Charlie’s condition but he shows no signs of being in pain and experts say that alternative treatment has a chance of improving Charlie’s quality of life." "It is unacceptable that Charlie’s parents are being asked to prove that their son’s life is still worth fighting for when it is their right as parents to pursue what they consider best for Charlie," said Foster. “We have letters and invitations from Doctors and specialists from around the world, and medical evidence that shows that Charlie could greatly benefit from this ground-breaking treatment. Charlie’s parents have been seeking this treatment since November – it is now July – time is of the essence.”

Foster further explained there is evidence that with the drug that could be administered to Charlie, there is "up to a 10%, and around 90-100% chance the medicine will cross the blood brain barrier," which is relevant to assessing the claims of brain damage. "This is a chance that Charlie’s parents and many doctors and specialists around the world are willing to take," said Foster. "All we’re asking is that the Judge and the Court give Charlie this chance.” The High Court in London is expected to render its ruling on the new evidence today or Friday, July 14.

Parents of Baby Held by UK Hospital: All We Want is to Take Our Baby for Treatment in U.S.A.

 

[Dragonlady]

Doesn't mean the High Court will change it's ruling, but it's hard to justify denial of treatment that the state isn't paying for.


Great Ormond Street Hospital says "claims of new evidence" in the treatment of terminally ill baby Charlie Gard have prompted it to seek a new hearing at the High Court.

In a statement, the hospital said: "We have just met with Charlie's parents to inform them of this decision and will continue to keep them fully appraised of the situation.

"Two international hospitals and their researchers have communicated to us as late as the last 24 hours that they have fresh evidence about their proposed experimental treatment.


Baby Charlie: Doctors consider fresh evidence

"...fresh evidence about their proposed experimental treatment."

Fresh evidence? Really, they're going with "fresh evidence"? What fresh evidence? That IT WORKS!?

Talk about a classic CYA. Looks like Mrs. May called and said, "You better make sure the egg isn't on MY face. Fix this. NOW!"
Fresh evidence my ass. More like, "Quick, we've been exposed!! Damage control, damage control. Spin, spin"

At least Charlie has a fighting chance now, thanks in no small part to his parents who would not accept a death sentence for their child. Come hell or high water, they would not go "quietly into that good night." Thank God they stood up and said, "not on MY watch."

I think characterizing this as Charlie having "a fighting chance" is an massive overstatement. He has, at best, a slim chance. Better than no chance for sure, but not something you'd want to hang you hat on.

Characterizing the courts initial decision as heartless and cruel denies how slim that chance is.

The NHS has paid to keep this baby alive and on a ventilator for almost a year, at no cost to the family. Would an American health insurance company have done the same?

 

[oldsoul]

Doesn't mean the High Court will change it's ruling, but it's hard to justify denial of treatment that the state isn't paying for.


Great Ormond Street Hospital says "claims of new evidence" in the treatment of terminally ill baby Charlie Gard have prompted it to seek a new hearing at the High Court.

In a statement, the hospital said: "We have just met with Charlie's parents to inform them of this decision and will continue to keep them fully appraised of the situation.

"Two international hospitals and their researchers have communicated to us as late as the last 24 hours that they have fresh evidence about their proposed experimental treatment.


Baby Charlie: Doctors consider fresh evidence

"...fresh evidence about their proposed experimental treatment."

Fresh evidence? Really, they're going with "fresh evidence"? What fresh evidence? That IT WORKS!?

Talk about a classic CYA. Looks like Mrs. May called and said, "You better make sure the egg isn't on MY face. Fix this. NOW!"
Fresh evidence my ass. More like, "Quick, we've been exposed!! Damage control, damage control. Spin, spin"

At least Charlie has a fighting chance now, thanks in no small part to his parents who would not accept a death sentence for their child. Come hell or high water, they would not go "quietly into that good night." Thank God they stood up and said, "not on MY watch."

I think characterizing this as Charlie having "a fighting chance" is an massive overstatement. He has, at best, a slim chance. Better than no chance for sure, but not something you'd want to hang you hat on.

Characterizing the courts initial decision as heartless and cruel denies how slim that chance is.

The NHS has paid to keep this baby alive and on a ventilator for almost a year, at no cost to the family. Would an American health insurance company have done the same?

Characterizing the courts initial decision as heartless and cruel denies how slim that chance is.

So, a court deciding, despite the fact that the family has raised the money to pay, that treatment (however slim the chances of it working) is simply not an option is, somehow, an act of humanitarianism? Get real. The court has acted as a "death panel" and has decided that little Charlie is simply not worth saving.

The NHS has paid to keep this baby alive and on a ventilator for almost a year, at no cost to the family. Would an American health insurance company have done the same?

Um, yes. Can you imagine the sh*t storm they would deal with in the media if they acted as the UK courts have? Even in the UK (not exactly anti-government) the media is blasting the court's decision.