My father passed January 2nd of this year. It was certainly hard. He developed brain cancer in late September, and it absolutely ravaged him. Miraculously he had very little pain, but as it progressed he kept losing abilities. The last month he couldn't even feed himself and could only barely raise his head by himself.
It was very difficult seeing him that way, as well as having to take care of him.
I still think of something I want to tell him etc. and then remember...oh...he's gone.
I'm sorry for your loss.
My husband had started having regular trips to the hospital with congestive heart failure. His last hospital stay seemed like one of those "routine" ones, but his blood pressure was too low for them to give him his regular medicine that usually put him right. Still, he was stable enough. Then he got an infection in his leg. It was incredibly painful for him. Almost simultaneously, he started losing coherence. His thinking and speech was muddled. It turns out, they said, that his liver was shutting down and toxins were impeding his brain functions. He started just sleeping more, waking up occasionally with leg pain that made him yell and grip the bed. That's when I decided that, whether he was afraid of addiction or not, he should have morphine. We knew. At first I fooled myself that maybe he would leave without a leg (he was also diabetic, so amputations are fairly common), but he wouldn't have survived a surgery like that. We talked about life-saving measures. I knew what he wanted, because we had talked, but I wanted to make sure. This was for real. We had them deactivate his defibrillator . Then he said something out of the blue about turning it back on. But he was so incoherent so much of the time. Even if his defibrillator shocked his heart, the heart itself was too weak to keep going. For his comfort, I decided he shouldn't be shocked. He was basically in a coma for his last two days. No morphine necessary. I was there, with his two best friends, when he took his last breath. Then I had to call our kids and tell them to come to the hospital. They had already really said goodbye, but I thought they should be there.
That is similar to how we handled Dad's last days.
By nature, both from our love and memories of our loved ones, and our inherent survival instincts demands us to "do whatever is necessary" to save our loved ones. But that is not always the answer, in fact most of the time it is not.
We placed Dad on DNR, which was also his wishes.
We also elected to not use a feeding tube when he could no longer swallow. By this time he absolutely had no meaningful existence. In fact we all knew it was better that he was unconscious most of the time. When he was conscious and somewhat lucid, he was either angry or sad. Seeing our father, who was a very happy-go-lucky man, in this mood was harder than facing his death. It really was. His death was a relief.
I am sad my Dad is gone. It broke my heart. I miss him. I would love to talk to him again. But nevertheless, his last month was a nightmare for everyone, especially him. It was hard. Hard. When he died it was a relief, an end of suffering for him and an end to the torture of seeing that suffering.