If my child had a 1% chance I'd take it. That's why these decisions are made as dispassionately as possible. You would take that chance, and so would the parents of the kid in the next bed, so would the young mother with two kids to raise herself, so would the 18 year old looking forward to college.
No one is more in need of medical care than the person you know, the face you have seen and the agony you have witnessed. The people who make these decisions don't see anyone just for that reason. The evaluation process is long just to keep emotions out of the decision.
There are no winners anywhere in the transplantation process. Not the donor, certainly, not the person receiving the body parts of a corpse, and not any of the people who didn't get the organ. It's nothing to be happy about.
Sarah is not cured of cystic fibrosis because she got a lung transplant. It's a genetic condition.
Because the donor lungs transplanted into the patient do not have the cystic fibrosis gene, the cells that line the lungs do not produce thick mucus. However, the patient still has cystic fibrosis, because the defective cystic fibrosis gene is in all of the rest of the cells in his or her body. That means cells in the sinuses, pancreas, intestines, sweat glands and reproductive tract will still produce thick mucus, according to the CFF.
What's more, cystic fibrosis patients who undergo a lung transplant need to take immunosuppressive drugs that put them at even greater risk of infections, the CFF says. (Bacteria already in the body from previous infections may infect the new lungs.) Patients are also at risk of organ rejection.
In a 2007 study, researchers at the University of Utah examined the risks and benefits of lung transplants for cystic fibrosis patients. They looked at 514 children with cystic fibrosis on the waiting list for a transplant, including 248 who did receive a transplant. Less than 1 percent of the transplant patients benefited from the procedure, the researchers concluded.
About half of the patients in each group died; there was no evidence that those who received transplants lived longer, the researchers said. The average survival time was 3.4 years after the transplant, and about 40 percent lived for at least five years after the transplant.
Lung Transplants Controversial for Cystic Fibrosis Patients | LiveScience
Sarah's parents kicked their tragedy can down the road.