What people don't realize is that this isn't about socialized medicine.
The child is being used to rail against socialized medicine. The parents had the money raised to treat the child. What stopped them is a law that essentially states that if the doctors and parents are in conflict the courts must consider the child first. That's where the problem. Even if there weren't socialized medicine the parents would have still faced the same legal obstacle.
I feel for them, it's highly unlikely the treatment would have had any affect, and the courts were faced with trying to determine whether That was worth the possible suffering he might have undergone.
There are no villains here, it's just a horrible disease and two parents desperate to try anything to save their child and doctors not wanting to cause further suffering