Merlin1047 updates

Discussion in 'General Discussion' started by Merlin1047, Jun 10, 2005.

  1. Merlin1047
    Offline

    Merlin1047 Senior Member

    Joined:
    Mar 28, 2004
    Messages:
    3,500
    Thanks Received:
    449
    Trophy Points:
    48
    Location:
    AL
    Ratings:
    +450
    After watching the number of views on the original thread go over 600, I somehow got the impression that a couple of folks may be interested in discussing this subject. Don't have much time right now, but I'll edit this later and update periodically.

    ====================================================

    I don't mind discussing the situation. I've received a good bit of information from folks on the board and perhaps I can reciprocate should someone find themselves facing a similar situation either personally or by way of friend or family.

    A few things have changed for me since the whole process started. First, I've always been a pretty independent and self-reliant SOB, sometimes to the point of arrogance. I've learned that accepting help from your friends isn't a sign of weakness. I've learned some patience and to accept things I cannot change. And I have seen a depth of determination, character and love from my wife which I had not previously appreciated. I've learned to be grateful just to wake up in the morning and enjoy the sunrise, smell the scents from the woods behind the house and to feel my own heartbeat. I'm closer to my family than I have ever been. I've talked to God a lot.

    But so much for the philosophy. To recap the treatment protocol, it involves eight rounds of chemo, each lasting about five days. Each requiring hospitalization for about a week. Then it's home for 3 to 4 weeks while the body recovers from having been poisoned by the chemo. The trick is that the body rebounds from the effects of chemo in a sufficiently short time frame to permit another round of chemo before the cancer cells have an opportunity to regenerate to previous levels.

    Right now I have completed round one of chemo. The doc was hoping to see the blast (cancerous white cells) cell count go to zero. I had a blast cell ration of 60 percent, the first chemo treatment knocked that down to about eight percent. Not quite the zero we had hoped for, but it will have to do.

    Right now we're waiting on the first recovery phase. I've had several blood transfusions and platelet infusions because my antibodies have been killing the platelets almost faster than they can pump them in. During my last consult with the doc, we agreed to suspend platelet transfusions in order to attempt to soothe my antibodies and to allow my body to generate its own.

    Blood test today showed that my platelet count has held steady now for the last three days. It's only 8k, which is far below the norm of approx 150k. The danger is that hemorraghe may occur since platelets are a clotting agent. I am on a medication to improve clotting, but it only helps so much and has its own undesireable side effects.

    My white cell count has also been steady, but also extremely low. It's level is 0.8 and the minimum should be about 4.5 to 10.

    So that's pretty much everything up to date. If anyone has any questions, don't hesitate to ask.

    And most importantly, thanks again everyone for your expressions of support. That's another thing you learn at times like these - I can face pretty much anything, but it helps to have friends to share.
     
    • Thank You! Thank You! x 1
  2. Annie
    Offline

    Annie Diamond Member

    Joined:
    Nov 22, 2003
    Messages:
    50,847
    Thanks Received:
    4,644
    Trophy Points:
    1,790
    Ratings:
    +4,770
    Merlin, you should know we all care about you! You post what you want. Keep what you wish private. Email or pm those you believe will keep quiet what you wish.

    I do think it does all of us a service, to follow along with your illness, but that is a choice best left to yourself and your wife.

    K.
     
  3. dmp
    Offline

    dmp Senior Member

    Joined:
    May 12, 2004
    Messages:
    13,088
    Thanks Received:
    741
    Trophy Points:
    48
    Location:
    Enterprise, Alabama
    Ratings:
    +741
    :beer: :D
     
  4. Merlin1047
    Offline

    Merlin1047 Senior Member

    Joined:
    Mar 28, 2004
    Messages:
    3,500
    Thanks Received:
    449
    Trophy Points:
    48
    Location:
    AL
    Ratings:
    +450
    They told me I'd lose my hair, but nothing happened for nearly two weeks. Well it's coming out by the handfull now!

    I'm thinking about getting one of those multi-colored clown wigs.
     
  5. Joz
    Offline

    Joz Senior Member

    Joined:
    Mar 9, 2004
    Messages:
    3,392
    Thanks Received:
    221
    Trophy Points:
    48
    Ratings:
    +221
    Hey, with your 'top gun' sunglasses and a slick head.....you'll still look cool!
     
  6. Joan
    Offline

    Joan Mommy Dearest

    Joined:
    Aug 29, 2003
    Messages:
    400
    Thanks Received:
    39
    Trophy Points:
    16
    Ratings:
    +39
    I find bald men rather sexy!!
     
  7. 5stringJeff
    Offline

    5stringJeff Senior Member

    Joined:
    Sep 15, 2003
    Messages:
    9,990
    Thanks Received:
    536
    Trophy Points:
    48
    Location:
    Puyallup, WA
    Ratings:
    +540
    Take it from me, Merlin, chicks dig the smooth bald look!
     
  8. no1tovote4
    Offline

    no1tovote4 VIP Member

    Joined:
    Apr 13, 2004
    Messages:
    10,294
    Thanks Received:
    616
    Trophy Points:
    83
    Location:
    Colorado
    Ratings:
    +616

    What about a multi-colored Mr. T style mohawk?
     
  9. Merlin1047
    Offline

    Merlin1047 Senior Member

    Joined:
    Mar 28, 2004
    Messages:
    3,500
    Thanks Received:
    449
    Trophy Points:
    48
    Location:
    AL
    Ratings:
    +450

    How about I just paint a mural on my noggin?

    Or maybe rent advertising space.

    String Christmas lights?

    Rotating beacon?
     
  10. Merlin1047
    Offline

    Merlin1047 Senior Member

    Joined:
    Mar 28, 2004
    Messages:
    3,500
    Thanks Received:
    449
    Trophy Points:
    48
    Location:
    AL
    Ratings:
    +450
    Mostly good news today.

    Blood test showed some positive developments. Platelet count up to 22k from previous 8k. Still a long way from normal (140K) but moving in the right direction.

    White cell count up to 1.1 from previous 0.6. Again, a ways to go to the bottom end of norm (4.5).

    But with both numbers nearly doubling, I'm happy with that.

    Red cell count down well below norm, which is strange because I've been eating like a damn pig. The result is that today my energy level is down a bit, but I'm still getting around ok, just have to take it about half speed and be careful not to stand up too fast. I guess I'd better get back to eating more liver.

    Overall, I'd say we've bottomed out and are on the way back up.
     

Share This Page