JBeukema
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- Banned
- #1
I wasn't sure whether to put this under law, ethics, or science :|
Imagine donating a sample of your DNA to help researchers study the genetics of diabetes. The disease is common among your friends and family, and you're proud of your role in finding out why. Now, imagine that some time later, you learn that your DNA has been used for other studies on topics you never expected — schizophrenia, human migration, inbreeding. Although your name isn't attached to the sample anymore, scientists are using your DNA to draw conclusions about your community and your ancestors. Some of these studies violate your cultural beliefs.
That's what happened to the Havasupai Tribe of Arizona. In 2004, they sued Arizona State University, the institution that originally collected the DNA, for failing to provide ethical oversight on the use of the samples. The case is still working its way through the courts.
Experts Call For Federal Regulation Of Genetic Ancestry TestingGenetic ancestry tests, which can cost just a few hundred dollars and require only a simple cheek swab, are gaining popularity among genealogy hobbyists and curiosity-seekers. But without clear rules and regulations, consumers may not be getting what they were promised. (Lee wrote specifically about the challenges posed by the direct-to-consumer genetic testing industry in the June 5 issue of The American Journal of Bioethics.)
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