My stepdaughter has severe CP and despite all the cynicism is one of the great joys of my life. My ex-wife told me about how all the naysayers wanted her to give her up saying her life would never be full.
Now despite her severe physical handicaps she is one of the top of her class. She has done and has more potential to succeed than my own children despite her disability.
Every life is precious and full of potential. I'm not a believer in god but if I were I would say god bless Rick for his belief in human life and god bless his little Bella.
Sad. He is in denial. Just like Ann claim her MS in under her control. Anyone who say they have MS is a liar because MS has them 24/7/365. I have had MS for almost 35 years an not one minute go by that it does not remind me. You never give up but you are never in control either. From the beginning of being dx I have never shed a tear or felt sorry for my self. I would love to say my live is full but it is as full as can be expected. Ever illness has limitation. My life is not what it use to be and not what I want it to be. Considering I am 72 years old, I am doing quite well. Not too many with MS live to have it as long as I have.
•Cerebral palsy may involve muscle stiffness (spasticity), poor muscle tone, uncontrolled movements, and problems with posture, balance, coordination, walking, speech, swallowing, and many other functions.
•Mental retardation, seizures, breathing problems, learning disabilities, bladder and bowel control problems, skeletal deformities, eating difficulties, dental problems, digestive problems, and hearing and vision problems are often linked to cerebral palsy.
•The severity of these problems varies widely, from very mild and subtle to very profound.
•The magnitude of the problems may wax and wane over time. However, the cause of the condition, the brain abnormality responsible for the cerebral palsy, does not get worse over time. Nevertheless, the clinical picture may show signs of deterioration as the individual ages.
Sorry, but this is not a full life. I have a 19 year old friend and her life is far from being full.
He put on the same facade as most people do when faced with a devistating chronic illness. I am in bed right now but I would rather be out fishing. Maybe it's true that when you are given lemons, make lemonade.
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