Discussion in 'General Discussion' started by roomy, Dec 6, 2008.
Has anyone had any experience of this horrible disease?
Never have, does one of your kids have it? Looks like early treatment is important....
My grandson has been diagnosed with it, he has been in hospital for 17 days and counting.The doctors seem to know very little about it.
Roomy, I'm sorry and your grandson is now on my prayer list. Here's some info from American Heart Association:
Okay, that's just not fair. I thought it was a motorcycle thing and was gonna laugh, but there's nothing funny about that. I will be praying for your grandson, Roomy.
What are they treating him with, do you know?
My son was diagnosed at age 6, he has since been given a clean bill of health, unfortunatley however that is not always the case. Might I suggest you visit the following.
We too will keep your grandson in our thoughts and prays.
Thanks everyone, your kind thoughts are much appreciated.
He has on his third different antibiotic, he has had 2 courses of gamma globulin through an IVG, he has just been treated with steroids (friday night}.He is on aspirin and something to combat the side effects of it.He has had a cat scan, mri scan, lumber puncture, he has been kept hydrated and medicated at times by drip feed and he is a little pin cushion because of all the blood they have taken.He has had all the necessary heart tests and fortunately the initial tests on his heart are clear but he will be monitored for a long time to come.The doctors are having a problem stabalising his temperature and getting his bllood levels back to normal.Hopefully the steroid treatment will sort this out.They mumbled something about an experimental treatment they could try if all else fails but we'll cross that bridge if and when we come to it.
Yesterday morning was the first morning without a temperature spike, the Doctors are looking for 3/4 days without a temp.We have our fingers crossed.
The main reason I made this post was to highlight it.It is very rare but it is also very difficuilt to diagnose.My grandson was sent home from the doctors with what he described as a virus which would run it's course.When he was taken back to the doctors with a worsening fever and stomach pains he was diagnosed with Tonsilitus and given antibiotics and sent home.Eventually my daughter in law insisted on a home visit from a Doctor who immediately called for an ambulance to take him to hospital where he was admitted and has been ever since.The Hospital did their tests and diagnosed and treated him for Scarlet Fever, the treatment had no effect and after more tests they diagnosed Kawasaki Disease and started treatment for that 12 days after he was admitted to Hospital and 19 days after he first became ill.
It is the biggest single cause of acquired heart disease in the world.Most kids are treat for a strep throat infection, the disease clears on it's own and the kid is left with heart problems that no one knows about.Someone has posted a link which describes the symptoms, you should bear in mind that atypical symptoms are pretty common.If your child has any such symptoms please make your Doctor aware of the disease.Most Doctors haven't seen it before.
My niece had it and recovered and has been healthy since. I hope your grandson has a similar experience.
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