Fibromyalgia

Does anybody have this syndrome...If so, how do you deal with it and what meds do you take???

I also know it's hard to diagnose and treat but there are many help sites----I think it's also closely related to chronic fatigue syndrome--(yuppie flu)--good luck with it!

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"Some men eventually stumble over the truth but they usually pick themselves up and walk on as if nothing ever happened."
-Winston Churchill

you're right but when I researched CFS once there were many cross references to fibromyalgia and many belonged to the same support groups. Thought she might get more info if she searched both conditions--yes more pain is associated with fibromyalgia !

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"Some men eventually stumble over the truth but they usually pick themselves up and walk on as if nothing ever happened."
-Winston Churchill

yes I have recently been told by a Reumatologist that this is my problem...I was sent to a specialist a few weeks ago for a nerve study for possible Neuropathy, which the test proved nothing is wrong in that department. I will see my doctor tomorrow to see which direction we will go next. I am presently taking Lodine which is an anti-inflammatory and Paxil to help me get a full night's sleep. I am in constant pain.

yes you are right about CFS...they are very closely related. In fact I have been told that I'm eligible for disability but in order to receive compensation, I should file for the CFS instead of FMS because it IS so hard to diagnose. You are also right about the yuppie flu...lol...I do feel as though I have the flu all the time. You know when a person starts an exercise program it's normal to feel some soreness...so jump back in there and work the soreness out...Not in this case. The more exercise a person does, the more sore he gets. It's like there's no working the soreness out. I try to do small amounts of treadmill, ABLounger, pilates and yoga on a regular basis but if I exercise 3 or 4 days per week, I am so sore I can barely get around. It then takes me a few days to get over that...then back to square 1..."They" don't know exactly what causes it and don't know of a cure for it...:huh: BTW...love all the smileys....

Oh believe me, it's much more than Chronic Fatigue...It's real pain...it's stabbing, burning, piercing, throbbing, nagging...

well actually Paxil, as you probably already know, is a anti-depressant for stress but "they" have found that certain drugs such as Amitriptyline and Paxil help with some of the pain associated with this syndrome. As for me, I took Amitrip...for a few weeks, 2 different strengths and it did not help me at all. I took 10 mg Paxil a little while and still was unable to get a good night's rest...always sleeping in REM...I am now trying 20mg Paxil and I still really see no difference. I feel as bad today as I did last May...I have some Ambien that I use from time to time. I also have some pain killers for the pain. I just would love to figure all this out and get back to normal, if I ever will...

Thanks guys... :dance: I really like this dude...Lots more smileys than at another site I go to...

thanks...be back soon

Dittos on the welcome--most importantly hang on to hope---having a condition that is difficult to treat is NOT a life sentence . ( I like the dancing dude too ) :dance:

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"Some men eventually stumble over the truth but they usually pick themselves up and walk on as if nothing ever happened."
-Winston Churchill

Wow, I can really sympathize. I've never been officially diagnosed, but since they can't really pin it down, I figured it wasn't worth going to specialist after specialist.
I've had it as long as I can remember. When I was little we thought it was growing pains, and I can remember my mom rubbing my legs when I couldn't sleep from the pain. Well, I'm now 25 and I'm pretty sure I stopped growing a long time ago!
I don't have as bad of symptoms as you do. I just get a deep aching several times a week. Sometimes I get lucky and go a whole day without pain. Some times it's in the arms, then the legs, then the neck...it moves around.
I got scared of taking so many pills (ibuprofen and Tylenol) so I switched to Aleve, since one or two a day seems to keep it in check. When I can't sleep I take melatonin, which is natural substance produced by your body anyway. You can find it at any drugstore. Non-addictive.
I also recommend HOT baths. For some reason, that quick submersion in really hot water relaxes the muscles to where its manageable.
I wish you much luck. Keep me posted on what you find out.

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"Any skeptic about what I'm talkin' about oughta come and talk to the people who know what they're talkin' about." --GWB

My mom has it. Not pretty, she basicly just gets sedated enough to not care.
It's also accompanied with other diseases, or progresses untill immune system
gets weak and allows other diseases in. My mom has 4 sleeping disorders, Lupus,
They think she has MS, Memory loss. a whole lot more, I feel for anyone with
Fib.